Comments on: 8 Year Old Chooses to Raise Awareness for Juvenile Arthritis in Lieu of Birthday Presents http://northtexaskids.com/ntkblog/index.php/8-year-old-chooses-to-raise-awareness-for-juvenile-arthritis-in-lieu-of-birthday-presents/ North Texas Kids | Best Online Resource Guide for Families in DFW | Parties | Events | Activities | Expo | Giveaways | Contests Tue, 18 Jun 2013 19:32:23 +0000 hourly 1 http://wordpress.org/?v=3.4.2 By: Suzanne http://northtexaskids.com/ntkblog/index.php/8-year-old-chooses-to-raise-awareness-for-juvenile-arthritis-in-lieu-of-birthday-presents/comment-page-1/#comment-40857 Suzanne Wed, 22 May 2013 18:37:05 +0000 http://northtexaskids.com/ntkblog/?p=12272#comment-40857 Susan, I hope you will get a notification of this reply. Check your blog e-mail address. Susan, I hope you will get a notification of this reply. Check your blog e-mail address.

]]> By: Susan CdB http://northtexaskids.com/ntkblog/index.php/8-year-old-chooses-to-raise-awareness-for-juvenile-arthritis-in-lieu-of-birthday-presents/comment-page-1/#comment-6999 Susan CdB Fri, 11 May 2012 03:19:06 +0000 http://northtexaskids.com/ntkblog/?p=12272#comment-6999 My daughter (who turns 8 this summer) was also diagnosed with juvenile arthritis before her 2nd birthday. She has been on many medications, including Prednisone, Methotrexate, Humira, Enbrel, Naproxen, several different eye drops for uveitis and several medications for ulcerative colitis. We have been so fortunate to receive free care at Scottish Rite (though they will start charging for their services this year). Many kids with JA live in cities that do not have access to even one pediatric rheumatologist!! My daughter's medical bills for her other illnesses cost us a small fortunate because of our lousy health insurance. Thankfully I discovered a diet that has helped her get off her injections and other medications. She's not 100% yet, but she's no worse than she was on the medications (in fact her SED rate is lower now than it was on medications). We tried dietary changes when she was first diagnosed six years ago because of other diagnoses from a few months before the onset of JA (peanut/tree nut allergy, chronic bronchitis, asthma), but eliminating those foods did not work. When she was diagnosed with ulcerative colitis, my research took a new turn toward what's in our food supply as well as chemicals in every day products we use (personal care products, household cleaners, etc.). Why are so many kids and adults being diagnosed with autoimmune diseases? I have six family members who were all diagnosed with autoimmune illnesses in the last 10 years. Why? I don't know. But because they live in different areas of the country, other than genes (though some of the affected family members are not related by DNA), the major common threads are food and products we might all consume/use. Fortunately for us, dietary changes now seem to be helping my daughter, along with supplements (Vitamin D, Omega-3s, Curcumin and probiotics). We will be at the Arthritis Foundation walk next week and we can't wait to attend our fifth Jambalaya Jubilee in Shreveport this June. It's a fabulous low cost conference/camp for kids with rheumatic illness and their families. In case anyone reads this post who has a child with JA, you can more learn about the camp/conference here - https://www.childrenandarthritis.org/Jambalaya/JambayalaJubilee.aspx JA is a horrible thing. Kids should be able to enjoy childhood without having to endure such pain, medications with unknown long-term side effects and possible deformities due to the destruction arthritis can have on the body. Best wishes to Kaetlyn in her fundraising efforts! We will keep an eye out for her team at the walk. Thanks for spreading the word about JA! My daughter (who turns 8 this summer) was also diagnosed with juvenile arthritis before her 2nd birthday. She has been on many medications, including Prednisone, Methotrexate, Humira, Enbrel, Naproxen, several different eye drops for uveitis and several medications for ulcerative colitis. We have been so fortunate to receive free care at Scottish Rite (though they will start charging for their services this year). Many kids with JA live in cities that do not have access to even one pediatric rheumatologist!!

My daughter’s medical bills for her other illnesses cost us a small fortunate because of our lousy health insurance. Thankfully I discovered a diet that has helped her get off her injections and other medications. She’s not 100% yet, but she’s no worse than she was on the medications (in fact her SED rate is lower now than it was on medications). We tried dietary changes when she was first diagnosed six years ago because of other diagnoses from a few months before the onset of JA (peanut/tree nut allergy, chronic bronchitis, asthma), but eliminating those foods did not work.

When she was diagnosed with ulcerative colitis, my research took a new turn toward what’s in our food supply as well as chemicals in every day products we use (personal care products, household cleaners, etc.). Why are so many kids and adults being diagnosed with autoimmune diseases? I have six family members who were all diagnosed with autoimmune illnesses in the last 10 years. Why? I don’t know. But because they live in different areas of the country, other than genes (though some of the affected family members are not related by DNA), the major common threads are food and products we might all consume/use.

Fortunately for us, dietary changes now seem to be helping my daughter, along with supplements (Vitamin D, Omega-3s, Curcumin and probiotics).

We will be at the Arthritis Foundation walk next week and we can’t wait to attend our fifth Jambalaya Jubilee in Shreveport this June. It’s a fabulous low cost conference/camp for kids with rheumatic illness and their families. In case anyone reads this post who has a child with JA, you can more learn about the camp/conference here – https://www.childrenandarthritis.org/Jambalaya/JambayalaJubilee.aspx

JA is a horrible thing. Kids should be able to enjoy childhood without having to endure such pain, medications with unknown long-term side effects and possible deformities due to the destruction arthritis can have on the body.

Best wishes to Kaetlyn in her fundraising efforts! We will keep an eye out for her team at the walk.

Thanks for spreading the word about JA!

]]>